Patient experience survey 2016

The Neurological Alliance has launched its second neurological patient experience survey. Please follow this link to take the survey.

The survey aims to collect vital information about the experiences of people affected by neurological conditions, including the quality of the treatment, care and support that they receive. It will help us to understand how much progress has been made in improving neurological services, and which areas to focus on for improvement.

The survey opened on June 30th and will remain open until September 30th. We welcome responses from anyone with a neurological condition living in England.

The results of our first patient experience survey, conducted in 2014, were published in 2015 as The Invisible Patients: Revealing the state of neurology services. The survey data we collected has been invaluable in providing evidence and examples to support a wide range of campaigning activity on behalf of people living with neurological conditions. We hope that this year’s survey will produce an even richer source of data which will set out a comprehensive picture of your experience of neurological services and make recommendations about how care can be improved.

This is without doubt a timely and exciting opportunity for the neurological community.

We need your feedback to be able to make the strongest case to decision makers about how services need to change. We really value your support and look forward to sharing our findings with you over the coming months.

An FAQ document on the survey is available here. If you would like to help publicise the survey, a printable flyer with QR code is available here.

Note on data protection

All survey responses will be kept completely anonymous. Where the survey asks for postcode information, this is in order to identify the local area you live in for comparison purposes and to understand local variations. This data will be privately shared with Public Health England in order to map each response to your local area. After this is completed, all postcode information will be permanently deleted. Your postcode information will not be published or shared with anyone else.

All publicly shared information will be fully anonymised. We have provided an option in the survey for people to provide their contact details if they wish. If you chose to provide contact details, they will not be published or shared with anyone else. We will only contact you if you state in the survey that you are happy to be contacted, and we will not share this information with anyone. If you choose to be contacted and provide any further information, it will not be shared or published without your explicit consent.

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