General organisations

Accessible Property Register

www.accessible-property.org.uk

APR are accessible property specialists. They provide a register of accessible and adapted residential property for sale and rent, including retirement properties, social housing and accessible holiday accommodation.

Action for M.E.

www.actionforme.org.uk

Action for M.E. is the UK’s leading charity dedicated to improving the lives of people with myalgic encephalomyelitis. They campaign for more research, better treatments and services, and provide information and support to people affected by myalgic encephalomyelitis.

ADDER (Action for Dystonia, Diagnosis, Education and Research)

www.actionfordystonia.co.uk

ADDER advances the education of the public in relation to the sickness and distress caused by dystonia. They promote the treatment of people with dystonia and offer support and welfare to patients, their carers and families. They promote awareness and encourage research amongst the medical profession of dystonia.

Aerotoxic Association

www.aerotoxic.org

The Aerotoxic Association provides support for sufferers of aerotoxic syndrome, including information, latest news and access to academic papers.

Alzheimer’s Research UK

www.alzheimersresearchuk.org

Alzheimer’s Research UK funds world class research to prevent, treat and cure dementia. The help people to understand dementia and the progress they (Alzheimer’s Research UK) are making. They form partnerships with government and other key organisations to make dementia research a national priority.

Alzheimer’s Society

www.alzheimers.org.uk

The Alzheimer’s Society works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.

Ataxia-Telangiectasia Society

www.atsociety.org.uk

The Ataxia-Telangiectasia Society aims to alleviate the distress of ataxia-telangiectasia through funding research, supporting families and raising awareness.

The Bladder and Bowel Foundation

www.bladderandbowelfoundation.org

The Bladder and Bowel Foundation is the UK charity for people with bladder and bowel disorders. B&BF provide information and support for all types of bladder and bowel related problems for patients, their families, carers and healthcare professionals.

British Acoustic Neuroma Association

www.bana-uk.com

The British Acoustic Neuroma Association assists and supports people affected by acoustic neuroma (vestibular schwannoma) and related conditions. They promote, support and publish results of research into procedures aimed at the prevention, early detection and successful treatment of acoustic neuroma. They also encourage research into procedures assisting in rehabilitation and improving the quality of life, of those affected.

The British Association of Brain Injury Case Managers

www.babicm.org/

The British Association of Brain Injury Case Managers are a not for profit organisation which was established in 1996 to promote the development of case Management in the field of acquired brain injury.

Carers UK

www.carersuk.org

Carers UK is the voice of Carers. They are an organisation of carers fighting to ensure that the true value of carers’ contribution to society is recognised and that carers get the practical, financial and emotional support they need.

Care Co-ordination Network Cymru

www.ccnuk.org.uk

Care Co-ordination Network Cymru is the lead organisation in Wales promoting and supporting care co-ordination and key working for disabled children across the 0-25 age range and their families.

Cares Trust

www.carers.org

Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. With their Network Partners, they aim to ensure that information, advice and practical support are available to all carers across the UK.

Carers Week

www.carersweek.org

Carers Week campaign for greater recognition and support for carers, and inform those who are unaware, of the services and benefits they are entitled to.

Contact a Family

www.cafamily.org.uk

Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. Their vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society. They work to remove the barriers imposed by society which prevent families with disabled children achieving their full potential.

The Dana Alliance for Brain Initiatives

www.dana.org/danaalliances

The Dana Alliance for Brain Initiatives is a New York-based non-profit organisation of more than 270 leading neuroscientists committed to advancing public awareness about the progress and promise of brain research and to disseminating information on the brain in an understandable and accessible fashion. The Dana Alliance does not fund research or make grants. They are supported entirely by the Dana Foundation, a private philanthropic foundation with principal interests in brain science, immunology, and arts education.

DIAL UK, Serving the Disability Advice Network

www.dialuk.org.uk

DIAL UK is a national organisation for a network of approximately 120 local Disability Information and Advice Line services (DIALs) run by and for disabled people. DIAL information and advice services are based throughout the UK and provide information and advice to disabled people and others on all aspects of living with a disability. All DIAL services are currently working to meet strict new quality standards.

Direct Enquiries

www.directenquiries.com

Direct Enquiries, The Nationwide Access Register, was developed in partnership with RADAR and the Employers’ Forum on Disability to provide people with information about disabled access in buildings and premises all across the UK. Direct Enquiries works with all the organisations registered, who provide Direct Enquiries with comprehensive information about their disabled access and facilities.

Disabled Living Foundation

www.dlf.org.uk

DLF is a national charity that provides free, impartial advice about all types of daily living equipment and mobility products for disabled adults and children, older people, their carers and families. The DLF aim to improve the quality of life of people living with a disability by finding independent living solutions.

Disability Now

www.disabilitynow.org.uk

The Equality and Human Rights Commission

www.equalityhumanrights.com

The Equality and Human Rights Commission is a non-departmental public body (NDPB) established under the Equality Act 2006 – accountable for its public funds, but independent of government. This commission brings together the work of the three previous equality commissions – the Equal Opportunities Commission, the Commission for Racial Equality, and the Disability Rights Commission – and also takes on responsibility for the other aspects of equality. Opening on 1 October 2007, the new commission works towards eliminating discrimination, reducing inequality, protecting human rights and building good relations, to ensure that everyone has a fair chance to participate in society.

The Disabled Workers Cooperative

www.disabledworkers.org.uk

The Disabled Workers Co-operative is a registered charity that helps disabled people to help themselves. Our aim is twofold – to raise the independence of disabled people (for those that want it) by enabling them to take an active role in the economy and achieve a greater sense of self-worth and also to raise awareness of the contribution that disabled people can make to society. They provide an online database and eJobs Portal aimed at jobseekers with disabilities.

Genetic Alliance UK

www.geneticalliance.org.uk

Genetic Alliance UK is the national charity of 150 patient organisations, supporting all those affected by genetic conditions.

Great Ormond Street Hospital

www.gosh.nhs.uk

Great Ormond Street Hospital is one of the world’s leading children’s hospitals, provide clinical care and training, pioneering new research and treatments in partnership with others for the benefit of children in the UK and worldwide.

Health6.com

www.health6.com

Health6.com is an human edited directory for health and business related sites.

Incontinence Living

www.incontinenceliving.co.uk/advice/i69

Incontinence Living supply a comprehensive range of incontinence products.

Mobility Trust

www.mobilitytrust.org.uk

With an initial purpose of developing new mobility aids, Mobility Trust now work to fund them. They concentrate on providing powered wheelchairs and scooters for severely disabled children and adults who cannot obtain them through statutory sources or purchase such equipment themselves. Mobility Trust feel it is essential that all disabled people be given the chance to attain their own potential for independence through mobility. They give direct help to disabled people, whether effected by a well know or obscure condition.

Patient UK

www.patient.co.uk

Initially starting out as a directory of UK websites which provided information of health, disease and related issues, Patient UK now aim to be a reliable and comprehensive source of health and disease information, mainly aimed at the UK general public, but of interest to all.

RADAR (Royal Association for Disability and Rehabilitation)

www.radar.org.uk

RADAR is the UK’s largest disability campaigning network, with over 900 individual and organisational members. Their vision is a just and equal society whose strength is human difference. Their mission is to enable individuals, networks and policy-makers to do things differently.

Spinal Cord Tumour Forum

www.spinalcordtumour.org.uk

For people in the UK who have had or whose lives have been affected by benign spinal cord tumours.

Stairlifts Reviews

www.stairliftsreviews.co.uk

Stairlifts Reviews is an independent website that provides impartial advice about buying a stairlift. The website has lots of useful information, including a guide about grants for home adaptations. There is also a helpful section that includes support for carers.

Talking Newspapers Association UK

www.tnauk.org.uk

The Talking Newspapers Association UK provide national and local newspapers and magazines on audio tape, computer disk, e-mail, internet download and CD-ROM for visually impaired and disabled people who find reading a strain.

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