Directory
The Neurological Alliance does not provide advice and information to individuals about services or specific neurological conditions. If you wish to seek this type of information please contact the relevant organisation from our directory of members.
This list is divided into national organisations and regional organisations
Last updated on: 11th August 2008. Please contact us if you have updated information for this directory.
National Organisations
A.D.D.E.R. (Action for Dystonia, Diagnosis, Education and Research)
International Coordinator,
Ms Val Sharpe,
Lead Rd, Greenside,
Ryton,
Tyne & Wear
NE40 4JU.
Tel. 01901 4139500
valsharpe@btconnect.com
www.dystonia.co.uk
Advances the education of the public in relation to the sickness and distress caused, promotes the treatment of people with dystonia and offers support and welfare to patients, their carers and families. Promotes awareness and encourages research amongst the medical profession of dystonia.
Ann Conroy Trust, The
33 Southam Road
Dunchurch
Rugby
Warwickshire
CV22 6NL
Tel. 01788 537676
enquiries@theannconroytrust.org.uk
www.theannconroytrust.org.uk
Provides support for suffers and carers of syringomyelia and related conditions. Works to inform health professionals, families and the general public about the condition. Also supports research in to syringomyela and related conditions.
Association of British Neurologists
Ormond House
27 Boswell Street
London WC1N 3JZ
Tel: 020 7405 4060
www.abn.org.uk
The ABN aims to encourage nationwide availability of excellent and equitable neurological services. It supports neurologists and neurological trainees in their clinical practice, research and academic activities and fosters communication with patient interest groups.
Association for Spina Bifida and Hydrocephalus (ASBAH)
42 Park Road
Peterborough
PE1 2UQ
Tel. 01733 555988
info@asbah.org
www.asbah.org.uk
Provides services to individuals with spina bifida and/or hydrocephalus, their families and carers; including support, advocacy and advice. Provides information on all aspects of the disabilities. Also supports research into medical, scientific and social aspects. Works to improve statutory services for those affected by these disabilities.
Ataxia UK
Lincoln House
Kennington Park
1-3 Brixton Road
London
SW9 6DE
Tel: 020 7582 1444
enquiries@ataxia.org.uk
www.ataxia.org.uk
Conducts fundraising to support medical research into causes and potential therapies. Provides information, advice and support to people affected by Ataxia.
Ataxia-Telangiectasia Society
IACR-Rothamsted
Harpenden
Herts
AL5 2JQ
Tel. 01582 760733
Fax. 01582 760162
atcharity@aol.com
www.atsociety.org.uk
Aims to alleviate the distress of A-T through funding research, supporting families and raising awareness.
BASIC (Brain and Spinal Injury Charity)
The Neurocare Centre
554 Eccles New Road
Salford
M5 5AP
Tel. 0161 707 6441
Fax. 0161 787 4558
enquiries@basiccharity.org.uk
www.basiccharity.org.uk
Provides information and support for people affected by neurological conditions. Runs a number of self help groups around the UK. Promotes research in to neurological conditions.
Brain and Spine Foundation
7 Winchester House
Kennington Park
Cranmer Road
London SW9 6EJ
Tel. 020 7793 5900
Fax. 020 7793 5939
Brain and Spine Helpline. 0808 808 1000
info@brainandspine.org.uk
www.brainandspine.org.uk
Aims to improve the quality of life for people with neurological disorders and to reduce neurological disability through research, education, and patient and carer support and information programmes.
British Polio Fellowship
Eagle Office Centre
The Runway
South Ruislip
Middx
HA4 6SE
Tel. 020 8842 1898
Fax. 020 8842 0555
info@britishpolio.org.uk
www.britishpolio.org.uk
Provides a wide range of information and advice about disability in general, polio and post-polio syndrome. Also provides support to people affected by polio.
Child Brain Injury Trust
C/O Radcliffe Infirmary
Woodstock Road
Oxford
OX2 6HE
Tel. 01865 552467
Helpline. 0845 6014939
info@cbituk.org
www.cbituk.org
Support and information for families and professionals who are affected by acquired brain injuries. CBIT is a national charity delivering projects and support through a helpline, parent support groups, books, leaflets and a web site. CBIT operates a small grant programme for children and young people, work in a participative environment and specialise in influencing the way in which serves are deliver.
DANDA- Developmental Adult Neuro-Diversity Association
46 Westbere Road
London
NW2 3RU
Tel. 0207 435 7891
Chair: mary@pmcolley.freeserve.co.uk
Treasurer & Campaigns: adrian_whyatt_athome@yahoo.co.uk
www.danda.org.uk
DANDA is the first national charity in the world specializing exclusively in all types of neurodiversity in adulthood, user-led or non user-led. Helps adults with developmental dyspraxia, dyslexia, Asperger’s syndrome, AD(H)D, dyscalculia and related conditions reach their full potential. Provides support, raises awareness.
Different Strokes
9 Canon Harnett Court
Wolverton Mill
Milton Keynes
MK12 5NF
Tel. 01908 313 501
Fax 01908 317 618
info@differentstrokes.co.uk
www.differentstrokes.co.uk
Run by stroke survivors for stroke survivors. Aims, through active self help and mutual support, to help younger stroke survivors to optimise their recovery, take control of their lives and regain as much independence as possible. Organises exercise classes nation-wide.
Dover District Carers' Support
10 Victoria Road
Deal
Kent
CT14 7AP
Tel. 01304 364637
support@carers-doverdistrict.org
Provides support and information to unpaid carers, including those with neurological conditions and ensures signposting to other relevant organisations.
Dystonia Society
89 Albert Embankment
London
SE1 7TP
Tel. 0845 458 6211
info@dystonia.org.uk
www.dystonia.org.uk
Provides support for people with dystonia, and their families, through the promotion of awareness, the publication of literature and medical research and welfare.
Encephalitis Society
7b Saville Street
Malton
YO17 7LL
Tel 01653 692583
Fax 01653 604369
mail@encephalitis.info
www.encephalitis.info
Supports individuals and families of people affected by encephalitis. Raises awareness amongst professionals about the condition and problems experienced. Promotes research into encephalitis.
Epilepsy Action
New Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7XY
Helpline number 0808 800 5050
Phone 0113 210 8800
Fax 0113 391 0300
info@epilepsy.org.uk
www.epilepsy.org.uk
Provides advice and information services for people with epilepsy, their families and those who care for them. Also campaigns for improved health and social services.
Headway - The Brain Injury Association
2 Tavistock Place
London
WC1H 9RA
Tel. 0207 841 0240
enquiries@headway.org.uk
www.headway.org.uk
Supports people with brain injury, their families and carers and concerned professionals. Has 115 groups throughout the UK, 57 of which run Activity/Rehabilitation Centres called Headway Houses. Campaigns for improved statutory services for people with brain injury.
Huntington's Disease Association
Down Stream Building
1 London Bridge
London
SE1 9BG
Tel.020 7022 1950
info@hda.org.uk
www.hda.org.uk
Provides care, advice, support and education to both families and professionals caring for people affected by Huntington's Disease.
Joint Epilepsy Council
P.O.Box 186
Leeds
LS20 8WY
Tel. 01943 871 852
sharon.jec@btconnect.com
www.jointepilepsycouncil.org.uk
An umbrella organisation that exists to enable epilepsy organisations to work together for the benefit of people who have epilepsy.
Lincolnshire Post Polio Network
P O Box 954
Lincoln
LN5 5ER
Tel. 01522 888601
info@lincolnshirepostpolio.org.uk
www.lincolnshirepostpolio.org.uk
Run by and for people who have had polio and their families and friends. Produces newsletter and a website and on-line library with upwards of 100 catalogued articles, with regularly updated list of medical articles and other information. E-mail enquiries welcomed and answered.
Neurosupport
The Neurosupport Centre
Norton Street
Liverpool L3 8LR
Tel. 0151 298 2999
Fax 0151 298 2333
info@neurosupport.org.uk
www.neurosupport.org.uk
This charity provides non-medical information and support to people with a neurological condition and their families, including library facilities, project and office base for neuro charities, programme of conferences and meetings. Facilitates Mersey Neurological Charities Group.
The Migraine Trust
2nd Floor
55-56 Russell Square
London
WC1B 4HP
Tel. 020 7436 1336
info@migrainetrust.org
www.migrainetrust.org
Focuses on those who suffer from migraine and other headache conditions. Aims to maximise management and minimise impact of the condition through funding research, education, promotion and support.
Motor Neurone Disease Association
PO Box 246
Northampton
NN1 2PR
Tel: 01604 250505
Fax: 01604 638289
info@mndassociation.org
www.mndassociation.org
Works to ensure that people affected by MND secure the highest standards of care in order to achieve quality of life. Stimulates and funds research into the causes of MND. Provides a helpline, information, equipment loan, financial support, a network of regional care advisers, local branches and volunteer visitors.
Multiple Sclerosis Society
Ms National Centre
372 Edgware Road
Cricklewood
London
NW2 6ND
Tel. 020 8438 0700
Fax 020 8438 0701
info@mssociety.org.uk
www.mssociety.org.uk
Provides support and information for people affected by MS through a network of branches (about 370 around UK) and through helpline and publications. Carries out research into MS and policy work and campaigns on MS issues. Also provides respite and holiday homes.
Multiple Sclerosis Trust
Spirella Building
Bridge Road
Letchworth
Herts
SG6 4ET
Tel. 01462 476700
info@mstrust.org.uk
www.mstrust.org.uk
The Multiple Sclerosis Trust is a leading UK charity for people with MS, their families and friends, and for the health and social care professionals who work with them. The MS Trust offers practical, deliverable solutions:
• Information about MS which is positive and constructive
• Education for nurses and other professionals
• Research which is relevant to people who live with MS
• Support for MS specialist nurses
Muscular Dystrophy Campaign
7-11 Prescott Place
London
SW4 6BS
Tel. 0207 720 8055
Fax 0207 498 9670
info@muscular-dystrophy.org.uk
www.muscular-dystrophy.org.uk
Meets the needs of people with neuromuscular conditions in the UK, their carers and their families. Searches for treatments and cures for over 60 muscle-wasting conditions. Provides support services to families and individuals through branches, a network of care advisors attached to specialist hospitals, a central information office and regular publications.
National ME Centre
DSC
Harold Wood Hospital
Romford
Essex
RM3 0AR
Tel. 01708 378050
nmecent@aol.com
www.nmec.org.uk
Provides consultant led clinics to confirm the diagnosis of ME and offer advice on management (appointments available via GP or consultant referral only). Offers one to one outpatient appointments with trained support workers who give advice in managing the illness. Provides some information about services for people with ME and chronic fatigue syndrome.
National Tremor Foundation
DSC
Harold Wood Hospital
Romford
Essex
RM3 0AR
Tel: 01708 386399
Fax: 01708 378032
tremorfoundation@aol.com
www.tremor.org.uk
Provides patients and their families with information on essential tremor. Maintains a world-wide referral network of specialists experienced in the clinical care of essential tremor patients. Assists in the formation of local independent support groups for patients
NCYPE (National Centre for Young People with Epilepsy)
St Piers Lane
Lingfield
Surrey
RH7 6PW
Tel. 01342 832243
Fax 01342 834639
info@ncype.org.uk
www.ncype.org.uk
The National Centre for Young People with Epilepsy is the major provider of specialised care to young people with epilepsy in the UK. The charity works in partnership with Great Ormond Street for Children NHS Trust and The Institute of Child Health. The NCYPE is dedicated to providing an environment where children with epilepsy can live, learn and develop, no matter how severely they are affected by epilepsy.
Pain Concern
PO Box 13256,
Haddington,
EH41 4YD.
Tel: 01620 822572
info@painconcern.org.uk
www.painconcern.org.uk
Information and support for pain sufferers, those who care for them and about them.
Parkinson’s Disease Society
215 Vauxhall Bridge Road
London
SW1V 1EJ
Tel. 02079318080
info@parkinsons.org.uk
www.parkinsons.org.uk
Provides practical support, information and advice to people with Parkinson's and their carers. Funds research to investigate the causes of Parkinson's, to improve the treatments available and to develop new treatment techniques.
Primary Care Neurology Society
P-CNS Secretariat
c/o Innervate Ltd
117 Waterloo Road
London SE1 8UL
Tel: 020 7921 0002
Fax: 020 7760 7193
info@p-cns.org.uk
www.p-cns.org.uk
The Primary Care Neurology Society is a network of like minded healthcare
professionals, organisations and partnering companies who all share an
interest in primary care neurology. The Society’s main aim is to generate
greater awareness and interest in neurology among professionals with an
interest, or working, in primary care to help improve the quality of
healthcare services to people suffering neurological symptoms and defined
illnesses/conditions.
The PSP Association
PSP House
167 Watling Street West
Towcester
Northants NN12 6BX
Tel: 01327 322410
Fax: 01327 322412
psp@pspeur.org
www.pspeur.org
Promotes research worldwide into the cause, an effective treatment and eventual cure for Progressive Supranuclear Palsy. Provides information and support to afflicted families across Europe. Raises awareness of the disease, particularly amongst relevant health professionals and amongst the general public at large, mainly in the UK. Fundraises to enable the above to take place.
RehabUK
3rd Floor
84 Uxbridge Rd
Ealing W13 8RA
Tel. 020 85799671
www.rehabuk.org
Rehab UK aims to enhance the social and economic independence of people with disabilities. It provides vocational and community rehabilitation services to people with acquired brain injury, and also assessment and case management services.
Speakability
1 Royal Street
London
SE1 7LL
Tel. 020 7261 9572
Fax 020 7261 9542
speakability@speakability.org.uk
www.speakability.org.uk
Speakability supports people with aphasia, and those that care for them, through its information service and network of self-help groups. We campaign to increase awareness of aphasia as a long-term condition. We provide training to paid and unpaid carers on communication skills.
The Stroke Association
Stroke House
240 City Road
London
EC1V 2PR
Tel: 020 7490 2686
info@stroke.org.uk
www.stroke.org.uk
Aims to help all in England and Wales affected by stroke. Develops and provides services, supports research, disseminates knowledge, provides training and education to improve standards of care.
Sue Ryder Care
114-118 Southampton Row
London
WC1B 5AA
Tel: 020 7400 0440
Fax 020 7400 0411
info@suerydercare.org
www.suerydercare.org
Provides specialist care and support to people with a neurological condition. They aim to be the first choice in their chosen field of activity. "Care that liberates lives."
Tourettes Action
Judith Kidd (Chief Executive)
Southbank House
Black Prince Road
London SE1 7SJ
Tel. 020 7793 2356
Helpline 0845 458 1252
enquiries@tsa.org.uk
www.tsa.org.uk
A Registered Charity dedicated to: providing support, educating, informing and campaigning, promoting medical research on behalf of all those affected by TS. National helpline, website forum with Dr online, research grants and maintains a list of UK specialists. Information packs, publications, video for hire, publicity. Holds National meeting for members and interested parties. Membership services include family networking - support throughout the UK and TSA advocacy. Regular quarterly news bulletins + newsletter.
Transverse Myelitis Society
Lew Gray, Secretary
35 Avenue Road
Brentford
TW8 9NS
Tel. 020 8568 0350
lewgray@blueyonder.co.uk
www.myelitis.org.uk
Provides information and support for TM sufferers, families and carers
Trigeminal Neuralgia Association UK
PO Box 413
Bromley
BR2 9XS
Tel. 0208 462 9122
jan.bruten@tna.org.uk
www.tna-uk.org.uk
Provides information, support and encouragement to trigeminal neuralgia patients, their families and friends; raises awareness of the condition among medical professionals and members of the public; promotes research and serves as an information centre for current treatments and details of any advances being made in the treatment of trigeminal neuralgia.
Tuberous Sclerosis Association
PO Box 12979
Barnt Green
Birmingham B45 5AN
Tel/Fax. 0121 445 6970
development-support@tuberous-sclerosis.org
www.tuberous-sclerosis.org
Provides support for individuals affected by tuberous sclerosis and those caring for them; education of professionals, sufferers and the general public. Encourages and sponsors research.
UK Acquired Brain Injury Forum (UKABIF)
Chloë Hayward
UKABIF Executive Director
PO Box 355
Plymouth
PL3 4WD
Tel. 01752 601318
ukabif@btconnect.com
www.ukabif.org.uk
The United Kingdom Acquired Brain Injury Forum is a not-for-profit coalition of organisations and individuals that seek to promote understanding of all aspects of Acquired Brain Injury and provide information and expert input to policy makers and others to promote the interests of brain injured people and their families. The Forum encourages the development of good practice by setting up working parties and conferences to discuss any aspect of ABI and supports the All Party Parliamentary Group on Acquired Brain Injury.
Regional Organisations
Buckinghamshire Neurological Alliance
Sandra Paget
PO Box 499
Amersham
Bucks
HP6 5XR
Tel. 01494 729373
bucks-neurological@tiscali.co.uk
Affiliate member
Caithness and North Sutherland Neurological Group
Carole Henderson
The Nerve Centre
5A High Street
Thurso
Caithness
KW14 8AG
Tel. 01847 890996
info@nervecentre.org.uk
Cambridgeshire Neurological Alliance
Diane Newman, Co-ordinator
PO Box 775
Peterborough
PE1 4WZ
Tel. 01733 552872
cambsneuroalliance@hotmail.com
info@peterboroughme.fsnet.co.uk
Affiliate member
Glasgow Alliance of Neurological Groups (GANG)
C/o Margaret Neil
MS Therapy Centre
Unit 19
Chapel Street Industrial Estate
Glasgow
G20 9BD
Tel. 0141 945 5036
Greater Manchester Neurological Alliance
Marie Oxtoby
c/o The Stroke Association,
6th Floor St James's House, Pendleton Way, Salford M6 5FW
Tel. 0161 742 7485 or 0161 742 7486
info@gmneuro.org.uk
Affiliate member
Hounslow Neurological Partnership
Brenda Murphy (Branch Secretary)
c/o MS Society,
Hounslow Branch, 82 New Heston Road, Heston,
Middlesex,
TW5 0LJ
Brensupsec@aol.com
Associate member
Kirklees Nerve Centre
Dot Goodall (Vice Chair)
The Nerve Centre Kirklees
2nd Floor, Standard House
Half Moon House
Huddersfield
HD1 2JF
Tel. 01484 469853
info@thenervecentrekirklees.org.uk
Affiliate member
Lancashire and South Cumbria Neurological Alliance
Ian Wardle (Chair)
c/o Department of Built Environment,
University of Central Lancashire,
Preston.
PR1 2HE
Tel. 01772 893210
www.lascna.co.uk
iwardle@blueyonder.co.uk
Affiliate member
Leicestershire Neurological Special Interest Group
Gill Wollerton
CVS Community Partnership
Beaumont Entreprise Centre
Boston Road
Leicester
LE4 1HB
Tel. 0116 229 3028
gill@ccp.org.uk
Affiliate member
Lincolnshire Neurological Alliance
C/O Hilary Boone (Secretary)
Lincolnshire Post Polio Network
69 Woodvale Avenue
Lincoln
LN6 3RD
Tel. 01522 500134
hilary.boone@lincolnshire-neurological-alliance.org.uk
www.lincolnshire-neurological-alliance.org.uk
Affiliate member
Mersey Neurological Alliance
C/o Neurosupport
Norton St
Liverpool
L3 8LR
Tel. 0151 298 2999
www.neurosupport.org.uk
Affiliate member
North Trent Neurological Alliance
Ann Hurley (Chair)
Regional Group Support Officer,
Headway,
Kirk House,
Browning Road,
Rotherham,
S65 4BE
Tel. 01709 511999
gsoyorkshire@headway.org.uk
Richmond Integrated Partnership
Belinda Canosa
Kew Baptist Church
Windsor Road
Kew
Richmond
TW9 2EL
Tel: 020 8940 1126
bcanosa@ins.org.uk
Sandwell Neurological Alliance
Daphne Cook
11 Dagger Lane,
West Bromwich,
West Midlands.
B71 4BT
Tel. 0121 553 1712
yes-utopia@blueyonder.co.uk
Affiliate member
Tees Valley, Durham & North Yorks Neurological Alliance
Joanne Cole (Coordinator)
84 Acklam Road
Thornaby
Stockton-On-Tees
TS17 7HD
Tel. 01642 641825
jo.cole123@ntlworld.com
www.neurologicalalliancenortheast.org.uk
Affiliate member
West Berkshire Neurological Alliance
Fred Davison
Goran
Bucklebury Alley
Thatcham, Berks
RG18 9NJ
Tel: 01635 202605
secretary@wbna.org.uk
www.wbna.org.uk
Affiliate member
Wales and Scotland
Scotland Neurological Alliance
Mark Hazelwood
MS Society Scotland
National Office
Ratho Park
88 Glasgow Road
Ratho Station
Edinburgh
EH28 8PP
Tel: 0131 335 4050
m.hazelwood@mssocietyscotland.org.uk
Wales Neurological Alliance
Miss Buddug Williams
Genetic Interest Group
Unit 31 Medicentre
Heath Park
Cardiff
CF14 4UJ
Tel: 02920 682 140
williamsbg@cf.ac.uk
www.walesneurologicalalliance.org.uk
Please contact us if you have updated information for this directory.