Blog
2025 England Rare Disease Action Plan: what does it mean for people affected by rare neurological conditions?
Rare Disease Day 2025 (28 February) saw the publication of the 2025 England Rare Disease Action Plan, available in full here, but what does it mean for people affected by rare neurological conditions? Our Policy and External Affairs Manager, Sam Mountney, takes a closer look. Fourth and final plan This is the fourth England action […]
Four lessons from party conferences
Georgina Carr, CEO Every autumn, UK political parties hold their annual conferences – gatherings of politicians, party members and affiliated groups. I attended the Labour and Conservative Party conferences, and spoke to policymakers about the importance of involving people affected by neurological conditions in decisions around health, and the need to build a health system […]
Update from our Chair: the year ahead
Cath Stanley, Chair of Trustees July represents the start of our new business year at the Alliance. This year, it coincides with the arrival of a new government. In my role as Chair of The Neurological Alliance’s Board of Trustees, I wanted to set out what both things mean for our work in the year […]
What has the #BackThe1in6 campaign achieved so far?
Thanks to your support, we’ve made some great progress towards improving support for people affected by neurological conditions, but we’re not stopping there. Here are some of the things you’ve helped to achieve through the #BackThe1in6 campaign so far. Please help to keep that momentum going! Achievements so far Thank you None of this would […]
Unpacking the 2024 England Rare Disease Action Plan
Rare Disease Day 2024 (29/02/2024) saw the publication of the third England Rare Disease Action Plan. Rare conditions are individually rare but collectively common, affecting 1 in 17 people in the UK at some point in their lifetime. Almost half of the 7,000 known rare conditions are neurological. The latest action plan builds on the […]
Too costly to wait: provide care and support now and reduce the economic impact of neurological conditions
Blog by Georgina Carr, Chief Executive of The Neurological Alliance. This week new research from the Economist Unit, sponsored by Roche, found that neurological conditions cost at least £96 billion annually – and that these costs could be reduced by more than £30 billion, if care was improved, and existing options for treatment and care […]
